Let's Support Ms. Melanie

As many of you already know, the Pilotte family is a very special family.  They have always supported their family & friends.  Now it is time for us to support them.

After many tests & exams, Ms. Melanie was diagnosed with ALS/PLS in September 2010.  She has been amazingly strong through this journey.  She has so many wonderful friends & family who have been there for her through her everyday walk.  We ask that you help her & the so many others who are touched by this disease by joining us in walking &/or donating in her honor through the ALS Louisiana/Mississippi Chapter Association walk fundraiser.  The walk will take place on Saturday, October 1st at Zephyr Field & LaSalle Park.  Check in is at 9:00am.  The 1.8 miles walk starts at 10:00am.  As you will see there is no registration fee for "Walk to Defeat".  It is strictly donation based.  There will be Melanie's Team tent set up in the park as a meeting place before the walk.  Melanie's Team t-shirts will be available the day of the walk.  The link at the bottom of the page will take you directly to Melanie's personal donation & team joining site.

God has blessed their family with such a beautiful woman.  She amazes everyone daily with her optimism & courage.  Please pray for her & her family.  We encourage you to forward this to anyone you think would want to contribute.

Click here for Melanie's Team Site

We're Home

I know it’s been a while since I updated but we have been very busy. 

Kamryn was able to come home from the hospital on May 21^st after Landon & I spent the night with her at the hospital.  She is still on caffeine and still experiences some suck apnea. 

Karsyn came home on May 28^th.  Landon & I also had to spend the night with her so we could learn how to use the apnea monitor.  The doctor at the hospital says she’ll have to be on the monitor for 3-6 months.  She continues to get her daily dose of caffeine.

At their doctor appointment this past week, Kamryn weighed 6 lbs 12 oz & is 18”.  Karsyn is 5 lbs 8 oz & is 17.1”.  They will get their 1^st shots next week.

Along with the regular pediatrician appointments, we have to go the eye doctor every 2 weeks until their retinas are finished developing.  It’s a rather stressful appointment.  They get their eyes dilated which can take hours.  Then the doctor uses a tool to hold their eyes open & sticks another instrument in their eyes to check the retina. 

While we cannot wait for Kamryn & Karsyn to meet all their wonderful family & friends, please understand that we are following the doctor’s orders that they not have any visitors for a while.  They simply can’t afford to get to get sick.  Even though they are almost 2 months old, in preemie land they are -3 weeks (yes, that’s negative 3 weeks old).

Kamryn's 1st car ride

Karsyn's 1st car ride

Kamryn's 1st bath

Karsyn's 1st bath